FOLLOW-UP from the 24-hour Nap: The 24-hour Awake Time. As I said in the previous video, this happens between 4 and 5 times a month usually. The good thing about the awake Days is that she is normally in a really great mood to begin with and by the end of the 24-hour week, as anybody would be, she's kind of rough lol. This doesn't necessarily mean every child with CDKL5 will have this issue, this is just something we experience and I have talked to other parents that have experienced it as well.

As I said in the previous video, you have a picture of your ideal self that you would like to achieve. being honest and realizing what the difference between this ideal self and current self is, is crucial to achieving your goals. rather than making your goal something like losing weight, what is the reason you want to lose weight? do you want to be healthier, do you want to look better, do you want to fit into smaller clothes, what is the reason? let's set that as our goal, and losing weight ma